Friday, 7 November 2008

Post fluid removal surgery - the following day

My hubby has not felt well today. His side is bothering him, but we're hoping that's due to where the needle was put in. He still looks a better colour and has a little more energy, but the huge improvement that was obvious yesterday is not so great today.

We are hoping that tomorrow (Friday) will have him feeling better.

He's off to our pharmacy in the morning to get his script for a slow acting endone pain relief med. Hopefully with the use of 'slow release' he will get more pain relief over a longer period of time, without the extreme need to sleep after having meds. I can tell he's not happy about the thought of wasting precious time sleeping due to taking pain meds, but he's also realising that he needs this med. So many conflicting issues!

While we were at the hospital both our doc and a nurse spoke to us about the need to include Yuri (our palliative care nurse) in what's happening. Unfortunatley he's away till Monday, or they'd have organised him to see us while we're still at the hospital. We need to get our head around the idea that palliative care is about 'quality of life while you're living' and not about 'dying' ... this is a tough one for us both! We've only seen Yuri once, when he came to interview us at home. My hubby told him then that he didn't want anything to do with him ... well not him personally, but with palliative care. It really is tough, coz as our doc explained, all he's doing now is palliative ... so there's no real difference. Neither of us had looked at it this way before.

We've been told that Yuri will be able to help us with food to help my hubby when he's not wanting to eat ... which apparantly the toxins released by the cancer often cause. Also if the fluid on my hubby's lungs requires the need for him to have oxygen, Yuri can arrange for us to have a machine that he can use at home, to get the oxygen levels in his blood up, and hopefully to help with his energy levels.

This journey is one I hope none of you evere have to experience!

4 comments:

laura said...

I hope your hubby feels better again soon. It sounds like Yuri will be very helpful to have around, even if you'd rather not need him. Some extra support can make a huge difference.

Katherine said...

My thoughts and prayers are with you and your family, Karen.

Jen said...

I have always though about pallative care as you have. Nobody wants to be put in that catagory, however since this is about "recovery" I think it is great that u are getting some of your hard earned tax money back to have help that will relive some of the daily stresses.

stephanie said...

I am thinking about you guys and praying for you.

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